Hello there! My name is Jackie Gilmartin and I am living with sever Solar Urticaria (known as SU in this blog). With the help of my best friend, Buffy Gerndt, we are starting this weekly blog. This blog is for sharing what I am learning about this condition, and sharing my struggles and those of my family and friends. I am not a doctor and this blog should not be used for diagnosis of any conditions or treatment. I merely want to educate people on this debilitating disease and bring awareness to the community about the causes, treatments, and living life with this disease. In raising awareness of it hopefully more doctors will be able to treat and learn about this. In my research I have found that polymorphic light eruption (PLME), SU, and various skin cancers and diseases are on the rise worldwide. Currently there is no cure for SU, and hopefully one day there will be one, and God willing that cure will be sooner rather than later.
Over the last month I had been thinking that it would be nice to help others learn about this disease, but how can I do that with being stuck at home, unable to take the amount time needed on the computer because of the light. I was praying to Jesus the other day (more like having a conversation) asking how could I do this. He brought me an answer. Buffy brought up the subject of starting a blog, and thus the idea was born. She said "You write it, and I'll type it". So, here we are. I've never written a blog and I will try not to bore you with whining or useless information. For me this will be a form of therapy and hopefully it will help others learn about the disease and even just walk away with a little hope.
I hope that you will stick with me as I tell my story over the next few postings.
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